A non-governmental organisation, NGO, the Haemophilia Foundation of Nigeria, HFN, has launched a nationwide patient identification and early detection initiative to improve the detection and management of bleeding disorders.
The Executive Director of HFN, Mrs. Megan Adediran told journalists that the initiative “Road to Clot: Reaching the Undiagnosed,” was designed to take basic bleeding disorder screening directly from hard to reach communities in Nigeria.
She said her foundation’s kicked off “Road to Clot: Reaching the Undiagnosed,” in Bwari Area council in Abuja Nigeria’s capital, aimed at identifying undiagnosed cases of haemophilia and other inherited bleeding conditions.
She stated that the “Road to Clot” programme would move screening from hospitals to communities through mobile testing units and community-based outreach points.
There, she said, individuals would receive bleeding history assessments, basic clotting screening tests, and on-the-spot counseling.
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Mrs. Adediran said bleeding disorders such as haemophilia and other inherited conditions remain largely invisible in many communities, not because they are rare, but because they are seldom recognised or properly diagnosed.
She said that although Nigeria’s population exceeds 230 million and should have tens of thousands of people living with haemophilia and related disorders based on global prevalence rates, only 941 individuals are currently recorded in the national registry.
According to her, the gap reflects thousands of children, youths, and adults who continue to live with unexplained bleeding, repeated hospital visits, preventable disability or even loss of life due to lack of proper diagnosis.
Adediran said that individuals with abnormal results would be referred for confirmatory testing and linked to appropriate care and follow-up services.
“The goal is simple but powerful: identify people early, reduce years of suffering, and create a clear pathway into care,” she said.
She added that the initiative would strengthen the national bleeding disorders registry, improve planning, and support advocacy for better policies, funding, and access to treatment.