Foundation sensitizes Nigerians on sickle cell disease
Sickle Cell Foundation,Nigeria are sensitizing Nigerians about sickle cell anaemia with an event tagged ‘Red Umbrella Walk’.
Mr Temitope Ashiwaju, the Group Corporate Communications and Events Manager, Dufil Prima Foods Plc, made this known in a statement on Sunday in Lagos.
Sickle cell disease is a genetic blood disorder characterised by abnormal haemoglobin, the protein responsible for carrying oxygen in the red cells. It significantly affects the shape and function of red blood cells, leading to various health complications.
According to Ashiwaju, ‘Red Umbrella Walk’ is an annual solidarity and awareness walk aimed at spotlighting sickle cell disease in Nigeria. He stated that the 2023 edition which was the seventh witnessed an outpouring of support from Nigerians and drew significant attention to dynamics of the disease.
Ashiwaju added that the foundation received support from some Non-Governmental Organisations (NGOs) and Indomie Instant popular music artiste and former Big Brother Naija winner, Laycon. He reiterated the commitment of to continually support the sickle cell community.
The Chairperson, Coalition of Sickle Cell NGOs (CSCNN), Ms Toyin Adesola, said sickle cell posed a significant public health concern in Nigeria as the country bore one of the highest burdens of the disease worldwide. Adesola noted that over 150,000 children were born with sickle cell disease yearly in Nigeria representing the highest number of newborns affected by the condition in any country.
She said the CSCNN would continue on its mandate as the umbrella body of advocacy and awareness in Nigeria, reducing the health burden associated with sickle cell disorder. Adesola said the NGO’s mission was to amplify and raise strong voices within the sickle cell community thereby driving societal and policy changes in Nigeria.
“I urge government to recognise the urgency of sickle cell disease and implement policies that prioritises the healthcare and well-being of individuals living with the disease.
“My heartfelt gratitude goes to all sickle cell NGOs, particularly fellow the CSCNN members, sickle cell warriors, supporters, and sponsors such as Dufil Prima Foods Plc, makers of Indomie Instant Noodles, for supporting the sickle community,” she said.
NAN/S.S
