The founder of the Nirvana Initiative, Mrs Modupelola Babawale, has expressed concern over the continued neglect and stigmatisation of people living with sickle cell disorder in Nigeria.
Speaking on Saturday during the ‘World Sickle Cell Outreach 2025’ in Agege, Lagos State, Babawale lamented that individuals with the disorder are often marginalised and inadequately supported by both the public and policymakers.
The event, which catered to 100 sickle cell patients, was held to commemorate World Sickle Cell Day, marked globally on 19 June.
Themed “Seen, Heard and Supported”, the outreach aimed to highlight the lived realities of ‘sickle cell warriors’.
“We’ve spent years focusing on genotype awareness. Now, it’s time to support those already living with the condition,” Babawale said.
She noted that the free medical outreach included health consultations, check-ups, medication, counselling, and care packages, while advocating for the creation of a dedicated ‘warrior centre’ to provide ongoing care and community support.
“As someone living with sickle cell, I know the importance of a strong support system. Many don’t have that privilege — and that’s why I founded this initiative,” she added.
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Babawale urged the public to shift from awareness campaigns alone to sustained support, inclusive policies, and an empathetic community approach.
She said that certified health workers also conducted malaria tests, and provided mosquito nets, medication, and water bottles to attendees.
“The goal is simple — let the warriors know they are not alone. They must be seen, heard, and supported,” she said.
Also speaking, Outreach Coordinator and Certified Nursing Assistant, Mr Stephen Oladipupo, said the programme sought to challenge stereotypes and offer a sense of belonging to patients.
“This is a platform for shared experiences. We want warriors to know they are part of a non-judgemental, understanding community,” he said.
Oladipupo added that the initiative also focused on coping strategies, self-care, and managing the psychological burden of stigma associated with sickle cell disorder.
One of the participants, Mrs Mosunmola Bamigbola, aged 50, encouraged fellow warriors to reject myths about dying young from the condition.
“It’s false to say sickle cell patients must die young. With proper care, we can live long, fulfilling lives,” she said.
Diagnosed at the age of five, Bamigbola said she maintains her health by staying hydrated, avoiding cold exposure, and consuming fruits and vegetables regularly.
She called on the government and policymakers to subsidise sickle cell medication and intensify public awareness efforts.
The outreach is part of Nirvana Initiative’s growing campaign to build a network of care and societal support for those living with the condition in Nigeria.
NAN