The Vivygold Foundation has officially launched in Anambra State, marking a significant milestone in the advocacy for the rights, health, and dignity of persons with albinism in Nigeria.
The event, which also commemorated International Albinism Awareness Day, brought together stakeholders, advocates, and members of the albinism community to highlight the urgent need for protection, inclusion, and empowerment.
Speaking at the unveiling and empowerment ceremony, the foundation’s Managing Director, Dr Victor Ugochukwu Ezeonwumelu, emphasised the organisation’s commitment to tackling the multifaceted challenges faced by individuals with albinism—including violence, discrimination, and poor access to essential services.
He drew attention to the disturbing frequency of attacks fuelled by harmful myths and superstitions, calling for a united societal effort to dispel false beliefs and foster a culture of respect and protection.
“To every Nigerian citizen: Open your eyes and hearts. Embrace every child’s potential,” Dr Ezeonwumelu urged passionately.
Addressing Health Inequities
The Vivygold Foundation unveiled plans to combat the heightened risk of skin cancer among persons with albinism—largely due to prolonged sun exposure and inadequate healthcare.
The foundation will establish sun safety clinics, distribute high-SPF sunscreen, and collaborate with medical professionals to deliver specialised care.
On education, the foundation aims to eliminate discrimination in schools by:
- Training educators in inclusive practices
- Providing customised learning aids
- Ensuring students with albinism receive equal opportunities to thrive
Ezeonwumelu also issued an impassioned appeal to multiple sectors:
- To educators: “Open your doors wider. Train your staff. Be the sanctuary of learning they deserve.”
- To the media and influencers: “Amplify our message. Share stories of resilience. Silence harmful myths with truth.”
- To healthcare professionals: “Join our clinic network. Lend your expertise.”
- To policymakers: “Partner with us. Strengthen protective laws. Fund inclusive healthcare. Make albinism a national priority.”
A Year Without Deaths, Yet Challenges Persist
In his remarks, Mr Ben Orizu, Chairman of the Anambra State Albinism Association (ASAA), announced a notable achievement—no recorded deaths among persons with albinism in the state over the past year.
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He attributed the success to increased awareness, improved healthcare access, and community solidarity.
“This achievement is a testament to our united commitment. We thank God for this gift of life,” he said.
However, Orizu revealed that nine active skin cancer cases are currently being managed, requiring urgent medical attention.
He called for support for the ASAA Medical Trust Fund to procure life-saving equipment, including sunscreen, protective clothing, and specialised eyewear, describing them as “essential for survival, not luxuries.”
He also praised the Anambra State Health Insurance Agency (ASHIA) for enrolling 70 persons with albinism under the Basic Health Care Provision Fund (BHCPF), granting them free medical insurance.
Orizu urged the National Health Insurance Authority (NHIA) to replicate the initiative nationwide, particularly by ensuring access to hospitals with chemotherapy and radiotherapy facilities for advanced skin cancer treatment.
Recognition and Renewed Commitment
Special recognition was given to Comrade Vivian Ezeonwumelu, Founder of the Vivygold Foundation and pioneer chairperson of ASAA, whose vision and tireless advocacy were described as a “beacon of hope.”
“As we unveil the Vivygold Foundation today, we renew our commitment to a more inclusive and compassionate society—where no person with albinism is left behind,” Orizu declared.
Also speaking at the event, Dr Adaeke Okechi, representing ASHIA, affirmed the agency’s commitment by announcing a one-year extension of free health insurance coverage for individuals with albinism.
Delivering a goodwill message, Rev. Fr. Jude Uwakwe, himself a person with albinism, expressed deep appreciation to the foundation and all supporters of the albinism cause. He called for increased national support and prayed for divine blessings on all advocates.
The event concluded with a panel discussion led by Chidinma Ajemba, followed by an empowerment session during which children with albinism received school bags filled with food flasks, water bottles, and umbrellas—symbolic tools to support their education and protection.