, Oluwafemi Ajayi, has restated the call for renewed public sensitisation on sickle cell prevention.){kind=link}
The Founder and President of the Gail Sickle Initiative (GSI), Oluwafemi Ajayi has restated the call for renewed public sensitisation on sickle cell prevention in Nigeria.
Ajayi made the appeal during the organisation’s Merit Award and Concert held in Lagos.
Ajayi stressed the urgent need for Nigerians to prioritise genotype compatibility before marriage, to reduce the number of children born with sickle cell disorder.
She noted that many people continue to ignore this essential step because of religious beliefs that falsely assure them that faith can alter genotype.
She emphasised that individuals with sickle cell disorder can marry, but only if they are willing to adopt children instead of giving birth, saying “neither religion nor love changes genotype.”
Ajayi expressed concern over the widespread stigmatisation sickle cell patients face, particularly in the workplace, recounting her own experiences as someone living with the disorder.
“I am concerned because I also have it and know what it feels like. I know the pain, the frustration, and Nigeria has the highest prevalence,” she said.
She appealed to employers to end discriminatory practices against sickle cell warriors and urged the government to introduce nationwide new-born screening to ensure early access to care for affected children.
Ajayi encouraged people living with the disorder to remain confident and purposeful, reminding them that their lives hold value and meaning.
On the challenges facing the foundation, she highlighted the need for funding and stronger partnerships from government agencies and well-meaning Nigerians.
According to her, “GSI provides holistic support that covers research, hospital care, advocacy on genotype awareness, and education, all of which require consistent financial backing.”
Speaking during the event on the theme: “Finding Strength in Weakness (In the Case of Winning Warriors),” Pastor Sola Mabogunje urged those living with sickle cell disorder to remain resilient and place their trust in God through difficult moments.
He said many people feel overwhelmed when they define themselves by their weaknesses, but faith provides strength and healing.
Pastor Mabogunje also appealed to the public to show compassion and create supportive environments for sickle cell warriors.
Other dignitaries at the event, including Mrs. Temitope Anola and Ladipo Oyewole, echoed the call for equity and inclusion in workplaces and urged Nigerians to end stigmatization and embrace tolerance.
The award and concert served as a platform to deliberate on strategies to stop the sickle cell cycle, address discrimination, raise funds, honour late warriors who made significant contributions in advocacy, research, healthcare, and support, and give hope to those still fighting.
The event also doubled as a fundraiser to support the welfare of individuals living with sickle cell disorder.